Banca de DEFESA: DINARA LAIANA DE LIMA NASCIMENTO COUTINHO

Uma banca de DEFESA de MESTRADO foi cadastrada pelo programa.
STUDENT : DINARA LAIANA DE LIMA NASCIMENTO COUTINHO
DATE: 10/10/2022
TIME: 13:00
LOCAL: Remoto
TITLE:

Daily photographs: participation of children with Congenital Zika Virus Syndrome during the Covid-19 pandemic

KEY WORDS:

Child, Participation, Congenital Zika Virus Syndrome, Microcephaly, Photovoice, Covid-19. 

PAGES: 50
BIG AREA: Ciências da Saúde
AREA: Fisioterapia e Terapia Ocupacional
SUMMARY:

Introduction: In Brazil, more than 3,500 children with congenital Zika syndrome (CZS) face difficulties participating in activities of daily living, which may be aggravated by health emergencies, such as the COVID-19 pandemic.
Aim: To explore the daily lives of children with CZS during the COVID-19 pandemic using photographic narratives captured by mothers and discuss possible strategies to improve participation results.
Methods: In this participatory action research, seven young Brazilian mothers acted as co-researchers using photovoice to describe the experiences of their children with CZS (from two to five years old). The research was conducted online and included the following steps: pilot study, recruitment, individualized training, sociodemographic interview, photovoice training, photo taking, focus group for contextualization, data transcription and analysis, and validation of analyses by the mothers.
Results: Content analysis revealed five categories that influenced the participation of the children: participation preferences, family relationships, access to healthcare, access to education, and social isolation. Regarding participation preferences, mothers reported their children’s desire to play with peers and family members and have autonomy. Mothers described the family environment as a happy, peaceful, and safe place for the children. Lack of therapy was perceived to negatively impact the health of children; thus, treatments were considered essential for child development. Access to education included accessibility of remote education and perceived lack of infrastructure and pedagogical preparation. Last, social isolation due to COVID-19 directly affected the daily lives and behavior of the children, interrupting therapies and medical appointments.
Conclusion: The photos and narratives captured several aspects of daily lives of children with CZS impacted by the COVID-19 pandemic, reinforcing the importance of considering the negative effects of social isolation and offering education and social assistance to promote participation and integral health.

COMMITTEE MEMBERS:
Presidente - 2218795 - EGMAR LONGO HULL
Interna - 1242804 - ADRIANA GOMES MAGALHAES
Externo à Instituição - CARINE CAROLINA WIESIOLEK - UFPE
Externo à Instituição - ROCÍO PALOMO CARRIÓN - UC