Banca de DEFESA: AMANDA SPINOLA BARRETO

Uma banca de DEFESA de MESTRADO foi cadastrada pelo programa.
STUDENT : AMANDA SPINOLA BARRETO
DATE: 30/06/2023
TIME: 09:00
LOCAL: Remoto
TITLE:

 

Experiences of children with Congenital Zika Syndrome while using motorized mobility: a qualitative study using the Photovoice method

KEY WORDS:

Congenital Zika Syndrome, Powered mobility, Participation, Photovoice.

PAGES: 50
BIG AREA: Ciências da Saúde
AREA: Fisioterapia e Terapia Ocupacional
SUMMARY:

Introduction: Most children with congenital Zika syndrome (CZS) have severe motor impairment, with no prognosis for independent walking. Although mobility is a human right, many children with disabilities do not have an independent form of locomotion. Early powered mobility with ride-on cars allows independent locomotion in various environments and can benefit body functions, activity and participation, as well as contributing to social skills and self-esteem. Therefore, the aim of this study was to explore the perception of mothers of children with CZS about their children's experiences while using ride-on cars at home and in the community.

Methods: This Participatory Action Research (PAR) was carried out using the photovoice method and obtained ethical approval with opinion number 3.980.703/2020. The mothers of four children with CZS, participants in the “Go Zika Go” intervention project, were included in the study. The research began with the distribution of modified ride-on cars for use at home and in the community and included six stages: 1) Presentation of the guide questions and training to use Photovoice; 2) Capture of photos by the participants; 3) Individual interview to contextualize the photos; 4) Transcription and analysis of data, using the principles of thematic analysis; 5) Validation of analyzes by mothers; and, 6) Exhibition of photos to the community. All stages were carried out remotely, with the exception of the exhibition, which was held at UFRN-Facisa.

Results: Mothers and researchers selected the 21 most relevant photographs. Five main themes emerged from the analyzed data, related to the use of ride-on cars: 1) Experiences of participation, 2) Independence in mobility, 3) Characteristics of mobility devices, 4) Family support and, 5) Accessibility of the environment. Faced with the experiences experienced while using the ride-on cars, the mothers addressed aspects such as greater socialization, involvement and participation in games and the expression of feelings such as happiness. Regarding independence in mobility while using ride-ob cars, experiences of autonomy, functional capacity and the freedom provided were emphasized. Regarding the characteristics of the mobility devices, some mothers mentioned that the adaptations made to the ride-on cars facilitated their use, such as the seat belt, while others were not satisfied, mentioning discomfort during prolonged use. As for family support, the availability of time was approached as a limiting factor for the use of ride-on cars, although their use favored the interaction of children with their families. Finally, the accessibility of the environment was considered a barrier to the use of ride-on cars in the community. 

Conclusion: The participants' narratives, associated with photographs of the daily lives of children with CZS, elucidated aspects of functioning, autonomy and participation, reinforcing the importance of independence provided by powered mobility for children with severe motor impairment. The use of these devices favors equity in its entirety, favoring the breakdown of social and cultural barriers, allowing children with CZS to participate, like their peers without disabilities.

COMMITTEE MEMBERS:
Presidente - 2218795 - EGMAR LONGO HULL
Interna - 1242804 - ADRIANA GOMES MAGALHAES
Externa à Instituição - MARIA DO SOCORRO NUNES GADELHA - UFPB
Externa à Instituição - PAULA SILVA DE CARVALHO CHAGAS - UFJF