GO ZIKA GO: EVALUATION OF THE FEASIBILITY OF MODIFIED MOTORIZED RIDE-ON CARS FOR THE MOBILITY OF CHILDREN WITH CONGENITAL ZIKA SYNDROME (SCZ)
Congenital Zika Syndrome. Disabled children. Motorized mobility. Participation.
Introduction: The clinical characteristics of Congenital Zika Syndrome (CZS) include a series of impairments and delays, mainly in cognitive and motor aspects, with a similar picture to Cerebral Palsy (CP). The poor prognosis in the motor performance of children with CZS raises questions about the possibilities of these children's participation in everyday life. The literature points out that motorized mobility is a viable and effective possibility of intervention for children with motor disabilities, with positive impacts on general development, independent mobility, bodily functions, activities and participation. The Go Zika Go project was created to provide children with CZS with an intervention model focused on participation results, using modified motorized toy cars, seeking to test the feasibility of this intervention. Objective: To determine the feasibility of a motorized mobility intervention for children diagnosed with CZS without a prognosis for ambulation, including acceptability and preliminary efficacy. Materials and Methods: This is a pre- and post-intervention longitudinal feasibility study, carried out at the Clínica Escola de Fisioterapia of the Faculdade de Ciências da Saúde do Trairi (Facisa/UFRN) with four children diagnosed with CZS. For this study, adherence, measured by attendance at intervention sessions, satisfaction, measured by the Quebec User Evaluation of Satisfaction with Assistive Technology (QUEST) and Satisfaction Perception Questionnaire tools, and mobility learning, classified as by the Assessment of Learning Powered Mobility (ALP). Secondary outcomes related to the effect of the intervention were goal achievement assessed using the Goal Attainment Scaling (GAS), mobility and social function using the Pediatric Evaluation of Disability Inventory – Computer Adaptive-test (PEDI-CAT), and participation through the Young Children's Participation and Environment Measure (YC-PEM) or Participation and Environment Measure for Children and Youth (PEM-CY). The intervention with the modified cars lasted 12 weeks of training and 4 weeks of follow-up, with a frequency of three times a week and a dosage of 40 minutes. Descriptive statistical analyzes were performed for sociodemographic data, children's motor classification, intervention feasibility data (adherence, satisfaction data and learning with ALP), GAS, YC-PEM/PEM-CY and PEDI-CAT. To explore the effects of the intervention, on the YC-PEM/PEM-CY and PEDI-CAT data (mobility and social/cognitive), the Wilcoxon test was applied comparing the changes between week 0 before the intervention, and sixteen weeks after the intervention, standard error measures were also used to verify changes in the PEDI-CAT domains. Results: Median age of children with CZS included in the study was 4.75 years, two females and two males, 3 classified using the Gross Motor Function Classification System (GMFCS) as level V and one as level IV. The results showed adherence of 75% of the total intervention time, satisfied or very satisfied family members, and gains in learning how to use ride-on cars after the intervention, and may indicate that the Go Zika Go intervention is feasible. It also proved possible to increase the scope of the goals established based on the GAS. Changes in PEDI-CAT medians and participation outcomes were not statistically significant. Individual changes were perceived by the standard error analyzes in the mobility and social/cognitive domains. Conclusion: Intervention with modified toy cars proved to be feasible to provide children with CZS with goal achievement, satisfaction and learning to use the modified car. The use of motorized mobility can be considered a viable alternative for children with CZS. We suggest the development of clinical trials to explore the effect of the intervention on the functional gains and participation of children with CZS.