Banca de QUALIFICAÇÃO: AMANDA SPINOLA BARRETO

Uma banca de QUALIFICAÇÃO de MESTRADO foi cadastrada pelo programa.
STUDENT : AMANDA SPINOLA BARRETO
DATE: 24/03/2023
TIME: 13:30
LOCAL: Remoto
TITLE:

 

Mothers' perception of their children's experience with Zika while using powered mobility: a qualitative study using the Photovoice method

KEY WORDS:

Congenital Zika Syndrome, Powered mobility, Participation, Photovoice.

PAGES: 40
BIG AREA: Ciências da Saúde
AREA: Fisioterapia e Terapia Ocupacional
SUMMARY:

Introduction: Most children with congenital Zika syndrome (CZS) have severe motor impairment, with no prognosis for independent walking. Although mobility is a human right, many children with disabilities do not have an independent means of locomotion. Early powered mobility with ride-on cars has been indicated for young children with severe motor impairment, as it allows independent locomotion in various environments. The benefits of early powered mobility include gains in body function, activity and participation, as well as contributing to social skills and self-esteem. Therefore, the aim of this study was to explore the perception of mothers of children with CZS about their children's experiences while using ride-on cars at home and in the community.
Methods: This Participatory Action Research (PAR) was carried out using the photovoice method. After modifying ride-on cars, four children with CZS (aged 3 to 6 years) participated in the intervention project “Go Zika Go” for 12 weeks at the Clínica Escola de Fisioterapia of the Federal University in the state of Rio Grande do Norte - Faculty of Health Sciences of Trairi (UFRN-FACISA). After this period, the children received the ride-on cars for use at home and in the community. The mothers acted as co-researchers and were trained to capture photos of the children while using the ride-on cars. The research included the following steps: 1) Individualized training; 2) Sociodemographic Interview; 3) Presentation of the guide questions and training to carry out Photovoice; 4) Capture of photos by the participants; 5) Individual interview to contextualize the photos; 6) Transcription and analysis of data, using the principles of thematic analysis; 7) Validation of analyzes by mothers; and, 8) Exposure of the photos to the community. All stages were carried out remotely, with the exception of the exhibition, which was held at UFRN-Facisa.
Results: Mothers and researchers selected the 21 most relevant photographs. Five main themes emerged from the analyzed data, related to the use of motorized toy cars: 1) Experiences of participation, 2) Independence in mobility, 3) Characteristics of mobility devices, 4) Family support and, 5) Accessibility of the environment. Faced with the experiences of participation experienced during the use of ride-on cars, the mothers addressed aspects such as greater socialization, involvement and participation in games and the expression of feelings such as happiness. Regarding independence in mobility while using cars, experiences of autonomy, functional capacity when activating and guiding the device and the freedom provided during these experiences were emphasized. Regarding the characteristics of mobility devices, some of the mothers mentioned that the adaptations made to their children's strollers facilitated their use, such as the seat belt, while others were not satisfied, mentioning discomfort during prolonged use. As for family support, the availability of time was approached as a limiting factor for the use of cars, although their use favored the interaction of children with their families. Finally, the accessibility of the environment was considered an important barrier to the use of cars in the community, unlike the physical space of the homes, where such problems were not reported by the mothers.
Conclusion: The participants' narratives, associated with photographs of the daily lives of children with CZS, elucidated aspects of functioning, autonomy and participation, reinforcing the importance of independence provided by powered mobility for children with severe motor impairment.

COMMITTEE MEMBERS:
Presidente - 2218795 - EGMAR LONGO HULL
Interna - 1242804 - ADRIANA GOMES MAGALHAES
Externa ao Programa - 3180823 - ISABELLY CRISTINA RODRIGUES REGALADO MOURA - UFRNExterna à Instituição - SORAYA PACHECO DA COSTA
Externa à Instituição - PAULA SILVA DE CARVALHO CHAGAS - UFJF