Banca de DEFESA: DANIELLE CRISTINA GOMES

Uma banca de DEFESA de MESTRADO foi cadastrada pelo programa.
DISCENTE : DANIELLE CRISTINA GOMES
DATA : 03/08/2018
HORA: 10:00
LOCAL: Sala de Videoconferência GEP
TÍTULO:

Linking content of quality of life questionnaires for children with chronic obstructive pulmonary disease with the International Classification of Functionality, Disability and Health

PALAVRAS-CHAVES:

Chronic Obstructive Pulmonary Disease in Children; Child; Quality of life; International Classification of Functioning, Disability and Health.

PÁGINAS: 85
GRANDE ÁREA: Ciências da Saúde
ÁREA: Fisioterapia e Terapia Ocupacional
RESUMO:

Purpose: To identify the principal health-related quality of life (HRQoL) questionnaires specific for Chronic Obstructive Pulmonary Disease in children, translated and validated for Brazilian children; and to examine how the reflected content in these tools are represented in the categories that compose the International Classification of Functioning, Disability and Health (ICF). Methods: This is a methodological study developed in two stages. The first stage comprehended a literature review for identification and selection of the questionnaires and the second consisted of linking the contents to ICF. For such purpose was followed the widely used Cieza and colleagues methodology, with the identification of meaningful concepts of questionnaires items and linking to correspondent categories on ICF, by two independent reviewers. Results: The following tools were identified and analyzed: Cystic Fibrosis Questionnaire (CFQ_parents6-13 and CFQ_6-11), Pediatric Asthma Quality of Life (PAQLQ), the self and proxy versions of DISABKIDS ® - Cystic Fibrosis Module, and of Pediatric Quality of Life Asthma Module (PedsQL-Asthma). Data were presented into absolute and relative frequencies. Kappa Coefficient was used to analyze inter-reviewers concordance. The study product was presented in two scientific papers. Conclusion: The analysis of the contents of quality of life questionnaires revealed that all of them are linked to the ICF at different levels. The majority of tools has a focus on body function, assigning a smaller or no frequency of these contents to the other components of human functioning, leading to a disadvantage in relation to a biopsychosocial assessment, as proposed by the ICF.

MEMBROS DA BANCA:
Presidente - 1803907 - SILVANA ALVES PEREIRA
Interno - 2218795 - EGMAR LONGO HULL
Externo à Instituição - LUCIANA CASTANEDA RIBEIRO - IFRJ